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2022 Annual SMA Conference
Disneyland Hotel | Anaheim, California June 16 – 19, 2022 Please view the 2022 Annual SMA Conference Basic Agenda Below, more specific details of events, workshops and more will be available in the coming months.
**Please note that this agenda is subject to change** Wednesday, June 15th
5:00pm – 7:30pm Registration Open for all Conference Attendees Thursday, June 16th
7:00am – 5:30pm Registration Open for all Conference Attendees 12:00pm – 2:20pm Newly Diagnosed Program (For Newly Diagnosed Families Only) 12:00pm – 2:20pm Children’s Program & Baby Room (For Newly Diagnosed Families Only) 2.30pm - 6:00pm Adults with SMA Lounge 4:30pm – 6:00pm Newborn Screening Meet & Mingle 6:00pm – 8:30pm Meet & Greet for all Conference Attendees 8:30pm – 10:30pm Dad’s Night Out Friday, June 17th 7:00am – 5:30pm Registration and Check-In 7:00am – 5:30pm Exhibitor Booths Open 7:30am Breakfast starts 7:45am – 8:45am Breakfast Symposium 8:45am – 12:30pm Children’s Program & Baby Room & 1:45pm – 5:00pm 9:00am - 10:30am Kids Talk it Out (Ages 11 - 17) 9:00am - 10:30am Siblings Talk it Out (Ages 12 - 17) 9:00am – 11:00am General Session Opening Remarks 10:45am - 5:15pm Adults with SMA Lounge 11:15am – 12:30pm Workshop Session # 1 ~Aquatic Physical Therapy Question & Answer Session ~Ethics, Angst, Excitement and Realities of SMA Treatments and Research ~Using Muscle-Based Exercises for Speech Clarity and Feeding ~Women's Health in SMA ~Therapeutic Yoga for Adults and Teens with SMA ~"Talk it Out" for Kids with an SMA-affected Parent (Ages 6 - 17) 12:30pm – 1:30pm Lunch 1:45pm – 3:15pm Workshop Session # 2 ~Taking Charge of Your Health: The Transition from Pediatric to Adult Care ~The ABLE Act: EnABLE Savings for Life ~Change Your Brain - Change Your Life: The number one tip from a Disability Life Coach ~Pediatric Therapeutic Yoga for SMA ~Spouses and significant others of adults with SMA sharing your experience ~Healing the Grieving Heart - Part I ~Aquatic Physical Therapy for Fun & Function, Children with Supported Head Control ~Using Our Breath for Big Emotions: Mindfulness for Kids 3:30pm – 5:00pm Workshop Session # 3 ~Medical Management of Adults with SMA ~The Role of PT and OT in your child's life: Being part of the team! ~I Need to Cough, I Need to Breath, I Need to Sleep ~Grandparents Coffee and Mingle ~Aquatic Physical Therapy for Fun & Function, Children with Independent Head Control ~Adults with SMA Relationships Panel - Share your experience ~Memory Boxes for Siblings: Creating a Lasting Treasure (for children only) 6:30pm – 8:30pm Family Friendly Researcher Poster Session 7:30pm – 9:30pm PJ Party and Movie Night 7:30pm - 10:00pm Teen Social 8:30pm – 10:30pm Adults with SMA Reception 8:30pm – 10:30pm Mom’s Night Out Saturday, June 18th
7:30am – 4:30pm Registration and Check-In 7:30am – 4:30pm Exhibitor Booths Open 7:30am Breakfast starts 7:45am – 8:45am Breakfast Symposium 8:45am – 12:15pm Children’s Program & Baby Room & 1:15pm – 4:15pm 9:00am – 10:30am Workshop Session # 4 ~Orthopedic Management in SMA ~Driving and Community Mobility ~Keepsake Creation: Grieving Through Art ~Unpacking Clinical Trials ~Young Adults Talk it Out (Ages 18+) ~Genetics and Reproductive Options for SMA Families 9:00am - 4:15pm Adults with SMA Lounge 10:45am – 12:15pm Workshop Session # 5 ~Navigating the Special Education Process: Setting Our Kids Up for Success ~An Approach to Exercise in Individuals with SMA ~Special Needs Trust Estate Planning ~Hold it No More: A Panel Discussion on Suprapubic and Mitroanoff Catheterization Options ~Benefits of Adaptive Recreation and Cycling ~Aquatic Physical Therapy for Fun & Function, Teens and Adults ~Healing the Grieving Heart, Now What? Part II 12:15pm – 1:15pm Lunch 1:15pm – 2:45pm Workshop Session # 6 ~Siblings Talk it Out (Ages 5 to 11) ~Service Dogs: Safety, Independence, Confidence ~How to Build Your Presence and Advocate Through Writing & Social Media ~The Caregiver's Toolbox (Essentials) ~A Lifetime of Good Nutrition ~What it Means to be a Teen on Wheels 3:00pm – 4:15pm Workshop Session # 7 ~Kids Talk it Out (Ages 6 to 10) ~Early Scoliosis Management in SMA ~University of Utah TRAILS Program: Adaptive Sports and Novel Adaptive Equipment ~Finding Hope After Loss: Helping Parents and Children Cope ~Emergencies - Anticipation, Prevention and Readiness in the Community 4:30pm Cure SMA Evening at the Park Sunday, June 19th
7:30am Breakfast starts 7:45am – 8:45am Breakfast Symposium 9:00am – 11:15am Children’s Program & Baby Room 9:00am – 11:15am Closing General Session – It’s a Wonderful Life Panel |
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