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2022 Annual SMA Conference
Disneyland Hotel | Anaheim, California June 16 – 19, 2022 Please view the 2022 Annual SMA Conference Basic Agenda Below.
To see the full conference booklet with workshop descriptions, speaker bios, exhibitor information and much more, check out our 2022 Annual SMA Conference Booklet **Please note that this agenda is subject to change** Wednesday, June 15th
5:00pm – 7:30pm Registration Open for all Conference Attendees Thursday, June 16th
7:00am – 5:30pm Registration Open for all Conference Attendees 12:00pm – 2:20pm Newly Diagnosed Program (For Newly Diagnosed Families Only) 12:00pm – 2:20pm Children’s Program & Baby Room (For Newly Diagnosed Families Only) 2.30pm - 6:00pm Adults with SMA Lounge 4:30pm – 6:00pm Newborn Screening Meet & Mingle 6:00pm – 8:30pm Meet & Greet for all Conference Attendees 8:30pm – 10:30pm Dad’s Night Out Friday, June 17th 7:00am – 5:30pm Registration and Check-In 7:00am – 5:30pm Exhibitor Booths Open 7:30am Breakfast starts 7:45am – 8:45am Breakfast Symposium 8:45am – 12:30pm Children’s Program & Baby Room & 1:45pm – 5:00pm 9:00am - 10:30am Kids Talk it Out (Ages 11 - 17) 9:00am - 10:30am Siblings Talk it Out (Ages 12 - 17) 9:00am – 11:00am General Session Opening Remarks 10:45am - 5:15pm Adults with SMA Lounge 11:15am – 12:30pm Workshop Session # 1 ~Aquatic Physical Therapy Question & Answer Session ~Ethics, Angst, Excitement and Realities of SMA Treatments and Research ~Using Muscle-Based Exercises for Speech Clarity and Feeding ~Women's Health in SMA ~Therapeutic Yoga for Adults and Teens with SMA ~"Talk it Out" for Kids with an SMA-affected Parent (Ages 6 - 17) 12:30pm – 1:30pm Lunch 1:45pm – 3:15pm Workshop Session # 2 ~Taking Charge of Your Health: The Transition from Pediatric to Adult Care ~The ABLE Act: EnABLE Savings for Life ~Change Your Brain - Change Your Life: The number one tip from a Disability Life Coach ~Pediatric Therapeutic Yoga for SMA ~Spouses and significant others of adults with SMA sharing your experience ~Healing the Grieving Heart - Part I ~Aquatic Physical Therapy for Fun & Function, Children with Supported Head Control ~Using Our Breath for Big Emotions: Mindfulness for Kids 3:30pm – 5:00pm Workshop Session # 3 ~Medical Management of Adults with SMA ~The Role of PT and OT in your child's life: Being part of the team! ~I Need to Cough, I Need to Breath, I Need to Sleep ~Grandparents Coffee and Mingle ~Aquatic Physical Therapy for Fun & Function, Children with Independent Head Control ~Adults with SMA Relationships Panel - Share your experience ~Memory Boxes for Siblings: Creating a Lasting Treasure (for children only) 6:30pm – 8:30pm Family Friendly Researcher Poster Session 7:30pm – 9:30pm PJ Party and Movie Night 7:30pm - 10:00pm Teen Social 8:30pm – 10:30pm Adults with SMA Reception 8:30pm – 10:30pm Mom’s Night Out Saturday, June 18th 7:30am – 4:30pm Registration and Check-In 7:30am – 4:30pm Exhibitor Booths Open 7:30am Breakfast starts 7:45am – 8:45am Breakfast Symposium 8:45am – 12:15pm Children’s Program & Baby Room & 1:15pm – 4:15pm 9:00am – 10:30am Workshop Session # 4 ~Orthopedic Management in SMA ~Driving and Community Mobility ~Keepsake Creation: Grieving Through Art ~Unpacking Clinical Trials ~Young Adults Talk it Out (Ages 18+) ~Genetics and Reproductive Options for SMA Families 9:00am - 4:15pm Adults with SMA Lounge 10:45am – 12:15pm Workshop Session # 5 ~Navigating the Special Education Process: Setting Our Kids Up for Success ~An Approach to Exercise in Individuals with SMA ~Special Needs Trust Estate Planning ~Hold it No More: A Panel Discussion on Suprapubic and Mitroanoff Catheterization Options ~Benefits of Adaptive Recreation and Cycling ~Aquatic Physical Therapy for Fun & Function, Teens and Adults ~Healing the Grieving Heart, Now What? Part II 12:15pm – 1:15pm Lunch 1:15pm – 2:45pm Workshop Session # 6 ~Siblings Talk it Out (Ages 5 to 11) ~Service Dogs: Safety, Independence, Confidence ~How to Build Your Presence and Advocate Through Writing & Social Media ~The Caregiver's Toolbox (Essentials) ~A Lifetime of Good Nutrition ~What it Means to be a Teen on Wheels 3:00pm – 4:15pm Workshop Session # 7 ~Kids Talk it Out (Ages 6 to 10) ~SMA and Dating/Sex Roundtable Discussion ~Early Scoliosis Management in SMA ~University of Utah TRAILS Program: Adaptive Sports and Novel Adaptive Equipment ~Finding Hope After Loss: Helping Parents and Children Cope ~Emergencies - Anticipation, Prevention and Readiness in the Community 4:30pm Cure SMA Evening at the Park Sunday, June 19th
7:30am Breakfast starts 7:45am – 8:45am Breakfast Symposium 9:00am – 11:15am Children’s Program & Baby Room 9:00am – 11:15am Closing General Session – It’s a Wonderful Life Panel |
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