June 16 - June 19, 2022 ~ Anaheim, CA

Welcome to the 2022 Annual SMA Conference!


The 2022 Annual SMA Conference will be held in Anaheim, California at the Disneyland Hotel from Thursday, June 16 – Sunday, June 19, 2022.
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Every year, Cure SMA sponsors a conference to bring together the leading SMA researchers, clinicians, and families living with SMA. Cure SMA has been hosting the Annual SMA Conference since 1988. We look forward to reuniting as a community at this year’s conference in order to lend each other support and strength, and to learn about the latest advances in research and care.

As always, the Family, Researcher, and Clinical Care Conferences run alongside each other. Through the conferences, we bring together researchers, healthcare professionals, and families to network, learn, and collaborate. The Annual SMA Conference is the largest conference in the world for those affected by SMA, and also for those involved in providing support and care for SMA patients.
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The weekend is filled with a wide variety of workshops, general sessions with leading researchers, a family-friendly research poster session, and more—plus fun events like our meet & greet/family fun fest, as well as teen socials and adults with SMA networking activities. There are also many opportunities to connect and interact with other SMA families and individuals with SMA while receiving first hand updates from the researchers.
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Please Note: You must complete your conference registration with Cure SMA prior to reserving your hotel room, for the special room rate of $279 at the Disneyland Hotel, $259 at Disney’s Paradise Pier Hotel, and $349 at Disney’s Grand Californian Hotel & Spa per night plus tax. Upon completing your registration, you will be given a direct link to book your discounted hotel room through our room block.
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Photo Policy: By registering for the Annual SMA Conference, you hereby understand that you may be photographed, videotaped, or digitally recorded, as may be your voice, and hereby waive any objection, condition, limit, or right you may have to the photographs or recordings. 

**We wanted to provide updates and guidance on issues of health and safety for the upcoming Annual SMA Conference. 
At this time, there are no COVID specific restrictions or requirements that are in place for the hotel or the local area in regard to masking or vaccinations. Moving forward, our general approach is to manage the situation with COVID as we would for any other virus. Therefore, we recommend the following. 
  • We strongly encourage vaccinations be up to date including recommended booster vaccinations. 
  • If anyone has symptoms or recent exposure, please cancel plans to attend the conference. You can contact Cure SMA for your cancellation, refunds, etc. 
  • Should you become sick with symptoms of any illness while attending the conference, please immediately stop attending sessions. 
  • Anyone who wants to wear a mask, should feel comfortable and supported to do so. 
  • Pay attention to physical distancing and contact with other individuals. 
As always at the conference, and generally in our SMA community, we ask that everyone respect and value others personal choices and decisions. 
We are excited to get back together in-person, and we are looking to do this in the safest way possible with COVID now being a part of our day-to-day lives. Attending the Annual SMA Conference has the risk of exposure to COVID, and with your help we aim to minimize this risk while carrying out our important events and activities. 
Please note that we will not be conducting any formal COVID tracking, tracing, or notifications during this conference, but we do ask for anyone who may test positive during or directly after the meeting to notify us, which we will keep strictly anonymous. 
We will keep you all updated if any of the above guidelines should change. 
Very best,

Kenneth Hobby, President

Collen McCarthy O'Toole, Vice President, Community Support

Mary Schroth, MD, Chief Medical Officer

Jackie Glascock, PhD, Vice President, Research
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Past conferenceS
I want to applaud you all for a great conference. The amount of work you have done to put it together is remarkable and it shows – BRAVO!
~ Gail Hartin
My husband and I were so impressed and energized by the conference and by Cure SMA. I have followed the website for years but gained new appreciation for the organization and its work at the conference. My husband and I both attended many conferences of various types in our professional careers and both of us felt this was the best organized, best thought out and well run conference we have ever attended. ​I was also impressed with the equal care and thought given to adults with SMA as well as the families and children.
~ Carol Johnson

Thank you to our Sponsors

​Cure SMA recognizes all of our generous sponsors for making the 2022 Annual SMA Conference possible. Thank you your ongoing and loyal support of our mission!